Deferred disability

I said last week that I wanted to spend a bit more time on disability. There are a few reasons for this.

Part of it is my own experience with diabetes. 

Three years ago I learned that diabetes was legally a disability, and wrote about feeling some ambivalence about that:

https://sporkful.blogspot.com/2020/09/identity-crisis.html 

It feels more real now. This is partly due to a medication change that isn't working out. We should be able to go back, but it has demonstrated that I don't snap back the way I used to. That's not uncommon with age, but it's not fun. 

I am starting to wonder if it is even possible for me to maintain healthy blood sugars while working this particular job. If not, I need to figure out what that means, beyond it just seeming very unfair.

Various organs -- including the pancreas -- not working as well as you age is pretty common.

It happens with joints too, where stairways and sunken living rooms can become much more dangerous.

Plus potential memory issues.

Speaking of my job, I talk to a lot of people of Medicare age (which is not as far away for me as it used to be), and there are some things you hear multiple times. A lot of people have retired to the coast, which is a common dream. The downside is that there just aren't a lot of doctors out there. 

For some people this has resulted in losing their Medicare Advantage plans without a sufficient network. They can still be on Medicare, maybe with a supplement, but they are often driving pretty far for their appointments. That may not be ideal for elderly drivers anyway, but if you had emergency situations or inclement weather, that can be much worse.

(Expect more inclement weather each year.)

Personally, I have never wanted to move to the coast, but you may find long wait times to get into doctors here as well. Lately, I have also had a lot of people getting the runaround at their pharmacy, because there are things that people can't find or don't know how to do. They are covered for the prescription and it is in stock (not always the case), so there shouldn't be an issue, but high turnover and inadequate staffing creates issues.

Of course, where I started thinking of it last week related to concerns about how we treat Covid, and the increase in cases of Long Covid we are going to see. The risk of infection is higher for many who are already disabled, but additional transmission is also going to increase the pool of disabled people.

The frustration in last week's post comes from so few people even paying attention to or caring about the needs of the disabled. 

That they have needs should be reason enough to care. 

That the improvements that we make -- like curb cuts or better signage -- ends up making life better for everyone else should be reason enough to care.

But also, know that the longer you live, the more likely you are to join their ranks and have similar needs. The longer we go without heeding them, the less likely it is that your needs will be acknowledged in turn.

Money can shield you from a lot, but it has its limits.